Sometimes we talk to someone who shifts our entire perspective. Has this ever happened to you?
Interviewing the incredible guests we have had so far has helped me grow so much, and really lean into living a better quality of life with psoriasis. Listening back to this episode though, I couldn’t help but notice how much of what Reena said, really struck a cord with me. I wrote down 10 quotes….its that good!
The Psoriasis Closet
Have you heard of the psoriasis closet? Me either, until today. Even though I lived in it for my entire Teens and most of my twenties. How about you? Are YOU is the psoriasis closet?
Psoriasis is a multi-dimensional disease. I used to underplay my disease almost all of the time. ‘Its just psoriasis’ or ‘it’s not that bad‘. Sometimes I meant it- but a lot of the time I was either in denial or just flat out lying.
But it is that bad and it can be awfully frustrating. Its cyclical and
I had the worst flare of my life in March 2014. I couldn’t sleep. The creams didn’t work on my new outbreak of
No one talks about the gap in-between. The wait for the dermatologist when you are desperate.
I found respite on community forums at 2am. I felt
Listening to Reena talk about her experience missing a friends
She has mastered being open and honest. She has mastered the art of
As she stood crying on the train platform, accepting that she couldn’t face the party with her skin in its current condition, she turned and went home. Her friends knew where she was with her skin, so there’s no animosity there. I would have gone to the party and ended up hiding from people in the toilets. That is not a good healing strategy- I have so much
Coping with itching
- currently updating this page 🙂
- My psoriasis story & the concept of living undercover.
- Coming out of the ‘skin closet’
- The challenges in dealing with psoriasis
- Dealing with people who refuse to touch us (context: massage)
- Forgiving yourself
- Playing down the impact of psoriasis (a big one for me! You too?)
- Itch management strategies:
- Mindfulness/ awareness based strategies
- Systemic/inside-out approaches
- Topical Techniques
(If you want more on mindfulness, then in the next episode with Clinical Psychologist Dr. Andrew Thompson we talk about scientifically proven aspects that have been tested in people with skin disease like us 🙂 )
About Reena Ruparelia (@psoriasis_thoughts)
Reena is a yogi, free spirit and all around happy human. Reena has also been living with psoriasis for the past 20 years. She runs an online Instagram account (@psoriasis_thoughts) where she raises awareness about the condition and documents the ups and downs of living with it. Reena hopes to empower others who are struggling with their skin to love and accept themselves as they are.
You can find her on Instagram and check out her work on LinkedIn
You can also listen to this episode (and subscribe so you don’t miss an episode on iTunes / Stitcher / Castbox
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